Talked to Becky today. She said dad had a really restless night and was even up at 2 a.m. wanting to take a walk. That didn't last long and he ran out of steam and had to go back to his room. She said he slept quite a bit today to make up for it. He's not making a lot of sense today and they're having a hard time understanding what he wants. I was hoping the chemo would have made some of that a bit better, but it hasn't. It is either due to the leukemia being in his spinal fluid and affecting his brain, or it could be the 2mg of dilauded every hour that's he getting. Hard to tell.
He has stopped asking for pain meds once they upped his dilauded drip so that's a plus. They'd like to get him off of the IV painkillers altogether, but that's a slow process. They said they want to keep him until next week sometime to follow him a bit more and see if he improves.
Becky has been talking to the Palliative Care folks (Social Workers) who have researched facilities for his care when he leaves UCSF and they said that one of the best places for him would be in Paradise at Hospice House on Bille Road. It's a 6 bed facility and they have beds available. It is one of only 3 like it in California that provide 24 hour inpatient services in a home like setting. It seems to be the answer that we need for when dad comes home. His care would be more than family and friends could handle at his house and having him in Paradise would be wonderful as he would be local and everyone could visit much more often.
Here's the link to FRH Paradise Hospice House: http://www.frhosp.org/medical/hospice.php
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